According to a study published in 2002, the life expectancy for white people who have Down syndrome is at least twice that for people of color who have Down syndrome.
No information was given as to possible causes for this discrepancy but researchers determined that further study is warranted.
Identification of factors responsible for the racial differences recorded could facilitate further improvement in survival of people with Down’s syndrome. (From research study)
Differences among racial groups in general, and the heart defects typically associated with Down syndrome do not account for the extremely large gap that this study found.
This information was published over ten years ago, and looks at data from 1983 to 1997, but according to Dr. Michael Harpold of LuMind, no follow up studies have been done.
This week, an article published on “SheKnows” brought another voice to the table. The headline read,
“Beverly Johnson on how Down syndrome affects children of color differently“
“There’s a remarkable disparity between children of color who get Down syndrome — life expectancy is age 23 — and non-black children with Down syndrome — life expectancy is 63 years old,”
Power in Numbers
Sign our petition and let our national advocates know that we need help getting this corrected. We need more research in this area.
All of our loved ones deserve to benefit from the successes we have worked so hard for. We will not discriminate within our own community!
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