“Action expresses priorities.”
What we know :
ABC News reported this in 2001: “The National Down Syndrome Society said the study indicates a “serious disparity that really needs to be addressed.””
A position statement from NDSS says: “It is clear that more needs to be done that is specifically targeted to those who are black and of other races.”
In 2012, another study found:
- Non-Hispanic black children with Down syndrome were twice as likely to die during childhood and adolescence compared to Non-Hispanic white children with Down syndrome.
In October, 2014, super model and spokesperson for Global Down Syndrome Foundation is quoted in She Knows:
- “There’s a remarkable disparity between children of color who get Down syndrome — life expectancy is age 23 — and non-black children with Down syndrome — life expectancy is 63 years old,”
- “The median age at death for whites with DS increased from 2 years in 1968 to 50 years in 1997…
- For blacks during the same period, the median age at death increased from 0 in 1968 to 25 years in 1997…
- For persons with DS of other racial groups, the median age at death was 0 years in 1968 and 11 years in 1997.”
How do we Express Priorities?
There is very little awareness about this issue within the Ds community.
Action is needed.
- Take action by signing our petition: http://bit.ly/DsRoadrace
Ask all of our national organizations
- 1) What has been done in the past 10+ years?
- 2) What can we, as parents, do to help?
Help us make this issue a priority.
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