By: Stephanie Holland “The prom is an iconic event in American culture, one that is consistently drawn upon in contemporary media to show the triumphs and travails of youth. Along with high school graduation, the prom is often heralded as one of…
read moreBy: Stephanie Holland This year, we’ll be celebrating World Down Syndrome Day on March 21st (3-21) with the seven national Down syndrome organizations by completing random acts of kindness. We’ve started a list of possibilities that our adults who have Down syndrome…
read moreBy: Stephanie Holland Guardianship is one of the biggest issues that parents of children who have intellectual or developmental disabilities (ID/DD) face. The discussion usually starts in IEP meetings when students start planning for “transition” from school to adult services. For a…
read moreBy: Stephanie Holland Have you ever been asked “the question?” I’d guess the question most frequently posed to parents of a child who has Down syndrome is “Did you know before he was born?” or “Didn’t you get tested?” Next on the…
read moreBy Stephanie Holland Change.org Petition Today we posted a petition to gather support for advocacy around an important issue – here’s why. The Research Back in March, and again in July, I wrote about a discrepancy that I found unacceptable and frightening….
read more“Action expresses priorities.” What we know : Center for Disease Control: June 08, 2001 / 50(22);463-5 http://www.cdc.gov/mmwr/preview/mmwrhtml/mm5022a3.htm ABC News reported this in 2001: “The National Down Syndrome Society said the study indicates a “serious disparity that really needs to be addressed.”” A position statement…
read moreBy: Stephanie Holland If he was here, what would Dr. Martin Luther King Jr. say and do about the current issues in our community? Today, as we celebrate Dr.King’s impact on our world, it’s a good time to reflect on our advocacy…
read moreBy: Stephanie Holland This is one time that I am happy to be proven wrong! There was a great deal of “spirited debate” about Governor O’Malley’s response to Emma’s petition on Change.org. Some of us were disappointed that he only committed to…
read moreBy Mardra Sikora Many of our community, when we hear the name Ethan Saylor, get a battle weary sensation tingling under the skin, and an ache that surrounds our heart. So much for “justice” and all that that implies…I know. I get…
read moreBy: Stephanie Holland The new year brings new opportunities and a chance to look back on how far we’ve come. The beginning of 2015 marks our first anniversary here on The Road. To measure our accomplishments we can look back at numbers:…
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