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The Road We've Shared

The Road We've Shared

The online community by and for parents and caregivers of adults who have Down syndrome

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Caregiving

Settling….

By Stephanie
On May 27, 2014February 15, 2016

As adults, we all end up settling in one way or another.  How many of us, with or without a disability, end up working at a job we absolutely love?  Most of us settle for something that will pay the bills.  Hopefully,…

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#jobs
A to Z Blogging Challenge 2014

W IS FOR What Should Be said- A TO Z BLOGGING CHALLENGE ON THE ROAD WE’VE SHARED

By Stephanie
On April 26, 2014December 30, 2015

By: Mardra Sikora An answer to the prompt: What I should have said When the mother picked up Amanda from preschool, a boy from her class marched up to her and said, “Amanda put on my coat today.”“Well,…

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A to Z Blogging Challenge 2014

T IS FOR Truth- A TO Z BLOGGING CHALLENGE ON THE ROAD WE’VE SHARED

By Mardra Sikora
On April 23, 2014February 15, 2016

By: Mardra Sikora Truth changes like clay in the hands of its master.  “In childhood, I witnessed my grandfather’s truth about skin color, faith and fear. I waded through my mother’s denial and each truth it bore. Pluto…

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Down syndrome in the media

Farm Kings – What’s the Verdict?

By Stephanie
On April 17, 2014February 15, 2016

Ben King from “The Farm Kings” I’m not a big TV watcher – unless it’s on Netflix or Hulu – but I know there is a reality TV show on GAC that I need to see. (Yep – thanks again Mom!) Join…

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WDSD

Why I write – or – my WDSD Hangover

By Stephanie
On April 17, 2014February 15, 2016

In preparation for our 321 eConference session yesterday, “Finding Support via Social Media – Blogging and Internet Communities” – I did a lot of thinking about WHY I choose to share my story on various social media outlets.   In the 45-minute…

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WDSD

The United Nations on WDSD14

By Stephanie
On April 17, 2014December 30, 2015

Health and wellbeing – Access and equality for all on the occasion of World Down Syndrome Day For those of us on The Road, WDSD was…  hectic to say the least.   Hectic in a GOOD way!  I didn’t want the month…

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A to Z Blogging Challenge 2014

K IS FOR What I Know Now – A TO Z BLOGGING CHALLENGE ON THE ROAD WE’VE SHARED

By Stephanie
On April 12, 2014December 30, 2015

By: Stephanie Holland If I could go back 27 years to the day I found out that Josh had Down syndrome, what would I tell myself? I didn’t know before he was born.  I didn’t know in…

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A to Z Blogging Challenge 2014

H IS FOR Heart Surgery – A TO Z BLOGGING CHALLENGE ON THE ROAD WE’VE SHARED

By Stephanie
On April 9, 2014December 30, 2015

By: Mardra Sikora My baby Weighed 18 Pounds and was almost two years old when I carried him into Children’s Hospital The hardest moments I have ever endured, surrounded the days that lead…

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A to Z Blogging Challenge 2014

B is for Birth – “A to Z Blogging Challenge” on the Road We’ve Shared

By Stephanie
On April 2, 2014December 30, 2015

By Helen Royal (Mother of Christian) I got the chance to talk to Helen when I interviewed her about her son’s beautiful pottery.  We shared such an instant connection that when it came time to write, I had to create two…

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Community Updates

REFLECTING ON ANOTHER YEAR

By Stephanie
On March 21, 2014February 15, 2016

I’m sure you all know by now that Josh’s favorite singing group is Celtic Thunder, right?!?!?  Well, if you didn’t, you do now.  🙂One year ago tomorrow THIS happened:   Josh’s Mom (Karen),Your Tweet got a reply! @GDonaldsonCT @RyanKellyMusic @neilbyrne_CT @laursadurrant@DeclanODonoghue It’s World Down Syndrome Day ~ A RT…

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  • New Study: Detecting sleep apnea in adults with Down syndrome using WatchPAT
  • Unwanted: How a Mother Learned to Turn Shame, Grief, and Fear into Purpose, Passion, and Empowerment – A to Z Blogging Challenge
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  • Home
  • About Us
    • Strategic Planning
  • Justice For Ethan
    • The Civil Case – A Summary
    • Press Release – Ethan Saylor Memorial Film Festival
    • Ethan’s Law – The Movie
    • A Brief Summary of the Story
  • Blog
  • Count Us In!
    • Research: Why Does it Matter to You and Your Families?
  • Research Corner
    • Stress and Depression Linked to Onset of Cognitive Decline and Alzheimer’s Disease in People with Down Syndrome
    • Alzheimer’s Disease – Dr. Brian Chicoine
    • Health & Aging with Down syndrome
    • Vaccine targeting AD with Down syndrome
    • Debate Over Antidementia Drugs
    • All about the Down syndrome registry
  • Down Syndrome in Children’s Literature
    • Children’s Library