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The Road We've Shared

The Road We've Shared

The online community by and for parents and caregivers of adults who have Down syndrome

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Category: Parenting

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Parenting

Theatre Lovers Vacation – when you can’t make it to nyc…

By Mardra Sikora
On July 1, 2014February 15, 2016

Marcus and “Charlie Brown” from the Sioux City Community Theatre Production of You’re a Good Man, Charlie Brown Who needs New York city?! Marcus was introduced to Broadway, I mean the real Broadway, because I had a job that allowed me to…

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Legal Issues Parenting

The joys of guardianship paperwork

By Mardra Sikora
On June 27, 2014February 15, 2016

Originally posted by Mardra of Grown Ups & Downs 1/15/2014 Yup folks, there it is, the 18 pages I have to complete within the next week. Sure, “the state” mailed them to me postmarked Dec 12th, but you see, to get the…

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#future planning
Parenting

WORK IS A REQUIRMENT

By Stephanie
On May 28, 2014February 15, 2016

         ~~~ WORK, in this house, is a REQUIREMENT ~~~The purpose of this post is not to debate sheltered workshops, but to give those who are interested, insight into the vocational process we have experienced with Josh.  His “resume” of sorts.   These are OUR…

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#jobs#Just Joshin' Ya
Parenting

Unexpected Joys – Blog Hop

By Stephanie
On May 22, 2014July 25, 2015

By Stephanie Holland When was the unexpected better than what you expected? This question comes from Mardra in her latest blog hop.She suggests that we go with our first thought – that’s easy – Josh. I’ve often mentioned to family and friends how…

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#Josh
Parenting

Josh Gets it

By Stephanie
On April 4, 2014July 25, 2015

By Stephanie Holland  Don’t underestimate him!! One of my favorite things to do is to “eavesdrop” on the conversations that Josh has with himself, his “boys” (the stuffed animals he surrounds himself with) or the television.  As an only child, he’s had…

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#Josh
Advocacy Parenting

Flipping Awareness

By Stephanie
On March 20, 2014February 15, 2016

The other side of awareness Today’s guest post in honor of WDSD comes from Susan Holcombe – mother of Rion. In preparation for all of the “awareness” discussions that would be happening this week, I asked for stories that flip our usual…

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Advocacy Parenting

Professionals listening to a parents perspective

By Mardra Sikora
On March 19, 2014February 15, 2016

In March 2014 the theme on The Road was stories. In this post, originally shared 3/19, Mardra shared a few of the stories she shared with professional service providers who work with developmentally delayed adults.  Speaking of Stories… I’m sharing the mugshot, I mean…

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Advocacy Parenting

JOSH IS DRIVING

By Stephanie
On March 9, 2014February 15, 2016

I don’t have any one story that pops into my mind that I can share with you about Josh.  Specifically, because I share daily stories about his life on his Facebook page, Just Joshin’ Ya, so it would seem that I’m all storied-out, OR…

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#Just Joshin' Ya
Down syndrome in the media Parenting

Why Stories are Important: Lesson 1

By Stephanie
On March 1, 2014July 27, 2015

By Stephanie Holland This month we’ll focus on telling stories about the adults who have Down syndrome that we love.  We’ll also address some of the issues that surround talking in public about our loved ones like: What stories should be told…

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#blogging#social media
Parenting

Listen to me

By Stephanie
On February 28, 2014August 28, 2015

In the past few weeks, maybe a month (time goes by so fast and is so hard to keep track of), Josh has been expecting more from those around him.  He has ‘all of a sudden’ developed an expectation that he be…

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#Just Joshin' Ya#Karen Gregoire#self advocacy

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  • Home
  • About Us
    • Strategic Planning
  • Justice For Ethan
    • The Civil Case – A Summary
    • Press Release – Ethan Saylor Memorial Film Festival
    • Ethan’s Law – The Movie
    • A Brief Summary of the Story
  • Blog
  • Count Us In!
    • Research: Why Does it Matter to You and Your Families?
  • Research Corner
    • Stress and Depression Linked to Onset of Cognitive Decline and Alzheimer’s Disease in People with Down Syndrome
    • Alzheimer’s Disease – Dr. Brian Chicoine
    • Health & Aging with Down syndrome
    • Vaccine targeting AD with Down syndrome
    • Debate Over Antidementia Drugs
    • All about the Down syndrome registry
  • Down Syndrome in Children’s Literature
    • Children’s Library