Last week an article in the news prompted me to consider what it might be like to live in a group home. This week, another article crossed my path that made me look beyond my own feelings and think about the job…
read moreDo you have someone who can complete your sentences? Someone who is the ying to your yang? Someone who truly makes you a better person? I do! Her name is Mardra and it’s her birthday month!
read moreImagine Imagine it, someone else makes all of your decisions: where you live, who you live with, and what your daily routine entails. This person might be a family member, but in most cases everything from the choices available to you to…
read moreBy: Stephanie Holland This week has been one of well-earned celebration and thoughtful reflection on the 25th anniversary of the passage of the Americans with Disabilities Act. So far I’ve been listening from the edges, reluctant to put my 2 cents in,…
read moreWhat do you do when someone says something that makes you question what you believe? What if the comments give you reason to doubt your vision of yourself and what you are called to do? That’s what happened to me today when…
read moreBy: Stephanie Holland This week another story of an adult who has Down syndrome gone missing came across social media. The 35-year-old woman was found, nearly a week later, but her story brings up more questions about what is “acceptable” risk when…
read moreBy: Stephanie Holland This year the annual NDSC convention was held in sunny Phoenix, Arizona. The 100+ degree weather made things outside of the conference venue a bit sticky, but inside everything was “cool.” If I had to sum up my own…
read moreBy: Stephanie Holland One of the ways society is finding out more about Down syndrome is through television and film. While healthy debates within our community critique the message of stories and methods used to tell it, we can all agree…
read moreBy: Stephanie Holland Parenting, of all kinds, requires hard work and determination. We all want the best for our children and try not to let what might go wrong keep us from living our best today. Sometimes, we need to put our…
read moreBy: Stephanie Holland For two long years, Patti Saylor has advocated for change after the death of her precious Ethan. It has meant long hours, countless miles of travel and hours in meetings. The emotional toll of reliving that terrible evening over…
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