Story by: Stephanie Holland ADVOCACY That’s a REALLY big word! Advocacy is a word that means different things to different people. As the organizer of this A to Z challenge, I thought it would be a good place to start us off…
read moreThanks to EVERYONE who stepped up and claimed a letter in our A to Z Blogging Challenge! I’m SO excited that we have so many different perspectives and voices that will be heard throughout the month! …
read moreWe hope you all enjoy the video tribute we put together of all our friends on this special day. Disclaimer: All of these pictures were shared with us on Josh’s Facebook page and because we have sooooo many friends, the video is just…
read moreWe’re getting down to the wire! April is almost here and we still have a few letters left that NEED to be claimed! If you’ve been thinking about writing for our month of alphabetical posts and haven’t picked…
read moreIt’s a GREAT day! Today has been so exciting and energizing! I’ve participated in the 321 eConference, and listened to Dr. Capone address the United Nations ! I’ve only begun to look through all the fabulous pictures and blog posts celebrating “designer…
read moreI’m sure you all know by now that Josh’s favorite singing group is Celtic Thunder, right?!?!? Well, if you didn’t, you do now. 🙂One year ago tomorrow THIS happened: Josh’s Mom (Karen),Your Tweet got a reply! @GDonaldsonCT @RyanKellyMusic @neilbyrne_CT @laursadurrant@DeclanODonoghue It’s World Down Syndrome Day ~ A RT…
read moreThe other side of awareness Today’s guest post in honor of WDSD comes from Susan Holcombe – mother of Rion. In preparation for all of the “awareness” discussions that would be happening this week, I asked for stories that flip our usual…
read moreNatalie Ball & Gregor Wolbring – 2012 Download .pdf of original study This study was conducted as part of an undergraduate honors thesis project by students at the University of Calgary. Participants were 12 parents – 6 with children who had intellectual disability…
read moreI don’t have any one story that pops into my mind that I can share with you about Josh. Specifically, because I share daily stories about his life on his Facebook page, Just Joshin’ Ya, so it would seem that I’m all storied-out, OR…
read moreOriginally posted 3/6/14. Updated 7/16/14 by Stephanie Holland WHAT’S IN IT FOR ME / US? If you’re like me, when you see the words “research” and “Down syndrome” together you automatically think about things like, clinical trials, new drugs, and finding a…
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