The online community by and for parents and caregivers of adults who have Down syndrome
There are two events coming up, at the end of March/beginning of April, that are aimed at advocacy in the disability and Ds community and meeting with Congressional leaders on The Hill. The first is the 2017 DISABILITY POLICY SEMINAR (DPS), a…
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Why would you plan an event to honor Ethan at a movie theater of all places? It’s a valid question. Since Ethan’s death, movie theaters have become traumascapes – places that trigger anxiety and depression – for many people, myself included.
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All too often the Down syndrome community specifically, and the disability community in general, are left out of important political debates. We are typically impacted by the same civil rights issues as other minority groups, sometimes even more so because of the…
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They say that with success comes responsibility. Today we’re going to put the spotlight on two young men who don’t take that responsibility lightly. Connor Long and John Franklin Stephens have both starred in films and both lend their voice to important…
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During the first season of A&E’s groundbreaking Born This Way, we got to meet seven young adults with Down syndrome and their parents. In six short episodes, fans fell in love with these dynamic individuals. Critics did too. So much so that…
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When Born This Way aired on the A&E Network, it prompted mixed emotions from the Down syndrome parent community. Strong emotions. I pondered long and hard about why those emotions came to the surface, and how we could help bridge the gap…
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When bad things happen to good people, we have two choices. 1) Get angry, condemn the perpetrator and move on. 2) Take a hard look at the systemic problems that allowed the perpetrator to get away with it in the first place…
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For me, the highlight of this weekend’s Down Syndrome Affiliates in Action (DSAIA) conference was the presentation is was honored to co-present. For the first time in 18+ months since I first wrote about the racial health disparities that exist in the…
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Today is a day set aside to remember a group of people we have lost to soon. People with disabilities who were killed by a family member. From the memorial site: Every year on March 1st, the disability community comes together to…
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There is no shortage of opportunities for us to help create change in our world today. We all have our reasons for why we choose to support (or not) a particular issue. When it comes to advocacy, we are usually motivated by…
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