In our capitalist economy, our children with Down syndrome are seen by some as less than – not able to be “contributing” members of society. So we fight. We fight language in an effort to change perceptions. We fight against the “R”…
read more“Waiting lists.” Is your loved on one? Have you heard of them? Do you know what they are? Nolo, a website that provides legal information, tells us where the term “waivers” comes from. “Historically, Medicaid-eligible people who needed help with things like…
read moreI watched the first six episodes of Born This Way with excitement. In Season 1, there were so many great moments, teachable moments, moments that made me laugh, cry, and feel grateful to be part of this amazing community that we belong to. Here’s…
read moreSometimes in life, how much you can accomplish is affected by “who you know.” Celebrities like Jamie Foxx have the ability to reach a huge audience. We’ve all seen how dedicated he is to his family and to causes that touch…
read moreChambersburg, Pennsylvania is less than an hour’s drive from Frederick, Maryland – the place where Ethan Saylor was killed in January, 2013. In Chambersburg, on September 9, 2010, another from our community was taken from his family….
read moreToday we celebrate the 50th birthday of a pioneer in Down syndrome advocacy. Chris Burke became famous with his role as “Corky” in Life Goes On – but he didn’t stop there. His music and his message have been a source of…
read moreImagine Imagine it, someone else makes all of your decisions: where you live, who you live with, and what your daily routine entails. This person might be a family member, but in most cases everything from the choices available to you to…
read moreBy Stephanie Holland Creating an advocacy agenda that helps parents, caregivers, and adults who have Down syndrome. ADVOCACY: (noun) public support for or recommendation of a particular cause or policy. In the Down syndrome community, there has been a long hard battle…
read moreBy Stephanie Holland As we say goodbye to Down syndrome Awareness Month, I’d like to personally thank all those who participated and helped us with our efforts! We managed to finish strong on the 21 for 31 blog challenge and we had so many…
read moreBy: Stephanie Holland As we’ve officially passed the half-way mark on Down syndrome Awareness Month, I wanted to take a moment and address some of the comments and discussions we’ve seen so far. Every year, we have the same debate: Awareness…
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